Rare and unique thrill to survive #RareDiseaseDayStory


Great! Another surgery

I have a manufacturing defect

With malware in the circuitry

I have this exceedingly rare affliction

Because of relentless mutation

Which enhanced evolution and diversification

The apple drops from the tree.

 The man jumps up from a bathtub; the mind-blowing equation.

Some cause tumor formation

Turn you into a tumor producing factory

Turn life into purgatory

Nobody heard  my silent screams

They are so loud they echo in my dreams.

Behind this face that beams a smile

Lies a dark road that goes on mile after mile.

Beauty only skin deep

But the leopards don’t change their spots.

The agony of the soul weep

Drops of colored waxes 

I was promised aught

I have been for naught

Everything was forethought

Before the pain, I had an aura of sophistication

Walking through life blindly

Motion is of essence

Which shall gain victory over adversity

As I plowed through tumor formation.

One by one I defeated tumors

As they formed more and more in numbers

The hepatic attack put me in depression

Worried about permanent oblivion

My fairy tale parents I didn’t wanna leave their love so soon

My soul dancing with the cosmic tune

I laughed a little too shrill

With the failure of dissociative drugs

Life turned to philosophy

Neither can I forget thugs

Nor can I forget parental hugs

Blasted out laughed

Cherishing every moment while combating

Regrettably, the trusted troops were turned off

Who protected me from fever, cold, and cough

Consumption disease attacked me

It wasn’t easy to get free

When the thinking machine got tumor

Floating in the oily stuff they plotted murder

The laughing girl became a cry baby

Which weighed on Mum’s soul heavy

She has fought cancers, transplants, and bears the scars

She has a weird zeal to shoot up to Mars

She asked the Gods showing them honor due

Prayed for her welfare too

They said ” Divine interference hast saved thy child”

She’s bound to suffer that is foreordained

Thou with thy child will make history

By making unusual victory 

Live forever in memory”

“As tears fly out of her eyes

They travel through the skies

Reach me on the summit

Her pain passes swift

Her sobs flying through the black hole reach me on the peak

Holding hands hug her, kiss her on the forehead

Soon she will be filled with glee 

As I shall drink her pain and suffering and her misery will be dead

As her valiant fight and determination are unique.”

I dreamt Lord said there is a rare and unique delight as you fight

Then winked at me and wished me luck

Poured into my mind more pluck

I have nothing to lose,

 I can’t try to live again a perfect life

 Relaxed and healthy without any strife

Under trees bearing chocolates

Mountains of books but being less inflate

I say I don’t want to lose this life

 With my Mum and the instances of delight

Often intersected by twilight.

Life is a vast and big cliff 

Climbing alone, enjoy it. 

In a shifty moment, it’s your grit

Once you slip and slide 

The wits inside guide 

Don’t let you fall off 

You huff and puff

Get up tough

Doesn’t mean “the end” of your story?

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Disclaimer

Views expressed above are the author’s own.



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